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The child has diarrhea which is a classic symptom of celiac disease. If she removed gluten from her diet and was shown to have the genes for celiac disease, the outcome of the endoscopy would be moot. It would mean that four out of five necessary criteria for a celiac diagnosis would be met without the need for either doing the endoscopy or having a positive result.
Too often doctors are unaware of these criteria, which were published worldwide several years ago, by leading research experts from around the world in the area of celiac disease. About twelve different experts agreed on these criteria while also validating the presence of non-celiac gluten sensitivity as a valid condition. I truly hope this child is put on a gluten-free diet before more damage can occur to her body. Moral of this story: Do some research and know what it takes to receive a positive celiac disease test result, as well as a positive NCGS diagnosis.
Actually your research is done right here by reading this blog! Patricia V said… I have been having stomach issues. My primary Dr. He wants me to make an appt with a Gastroenterologist. Just by the numbers after all my research it looks like Celiac. Any thoughts? I include this one as it is a classic example of something we see often. Now, this particular patient is very pro-active. She did her own research and correctly, I might add, diagnosed herself.
What if the thought of seeing a specialist, let alone the cost of doing so was overwhelming to her? What if there was a 6 to 9 month or more wait to see the specialist? In other words, there could be many reasons a patient who very likely has celiac disease is not going to pursue it further. The result is a person who becomes more and more ill from a disease that they later find could have been prevented by removing gluten from their diet.
If they had only had their lab test interpreted correctly, they could have stopped eating gluten and prevented the development of a disease that is now shortening their life. A woman had been previously diagnosed from her doctor with DH dermatitis herpetiformis , a very unsightly and uncomfortable skin condition and a form of celiac disease.
DH is absolutely known to be caused by gluten, yet this was never told to this patient. Fast forward a few years and this woman has now developed more health problems, specifically multiple sclerosis, an autoimmune disease of the nervous system. Gluten is known to create autoimmune disease. Further, gluten is known to affect the nervous system more than any other system in the body, including the digestive tract.
Upon seeking help after her M. She is feeling better gluten-free but she now has M. Can we state categorically that if she had eliminated gluten upon first being diagnosed with DH that she would not have developed M. The reader also asks if blood tests can be negative with DH. Yes, they can and frequently are. This leads us to explain some things about this particular patient.
She has known to have DH which is solely due to gluten, yet it can be present with negative blood tests. Does that make the diagnosis or need for a gluten-free diet in question?
Not at all. She has now been diagnosed with MS. We know that second to the digestive tract, the most common system to be affected by gluten is the nervous system, with autoimmune diseases occurring at a very high rate.
Does the negative celiac disease test ensure that gluten had nothing to do with the development of MS? Gluten-sensitive patients not only have to do their own research regarding their symptoms but they have to self-diagnose and sometimes are forced to interpret their own lab tests!
What a sad story. The lack of understanding of the damage gluten can cause is staggering. The individual below has a positive celiac disease test, yet after 4 months on a gluten-free diet, feels no better. As confused as she is, how long do you think she will continue the diet when she feels no better? What would be the highest number? Those were tests I had for celiac.
Doctor told me to go on gluten free diet since tests are positive for celiac disease. But what does it mean that IGG is negative? And IGA 49 confirms celiac? I am 4 months on gluten free diet and I am not feeling better. It is a positive endomysial test that has caused her doctor to diagnose celiac disease.
The AGA — IgA test is also positive, giving us strong evidence that her body is having a negative reaction to gluten. We, humans, are so funny sometimes. This individual wrote in from a blog. I speak often on this topic, feel free to search the blog for more information. We mentioned earlier when reviewing celiac disease test options that a low IgA can potentially falsely affect test results. Below is such an example.
When the total IgA results are low, any test utilizing that immunoglobin will be false. Therefore we cannot tell whether this person has a positive tTG or not. The high C-reactive protein shows inflammation, so it is important to figure out where it coming from. It makes me want to scream, honestly, but it happens a lot. Helping such people get to the root cause of their problem is what I specialize in. The stable datum is that if the body is feeling terrible there IS a reason for it.
Finding out the root cause of why is not terribly difficult when you know-how. We have the tools to discover why you may be having trouble with a weakened immune system. We will hold your hand through the changes and make each step of change an easy one. Contact us for a Free Consultation — Call Dr Vikki Petersen is a public speaker, author of two books, several eBooks and creates cutting edge content for her YouTube community.
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